Medicaid Waiver Renewal Planning Begins

November 19, 2020

State solicits stakeholder input for Comprehensive Demonstration Waiver

On Thursday, November 12th, the Department of Human Services (DHS) held its second listening session to solicit stakeholders’ input regarding existing services and ideas for new programs that are or could be funded by the NJ FamilyCare Demonstration Waiver, also known as the 1115 waiver.

Autism New Jersey provided testimony on three priority areas:

  1. developing new programs to provide effective treatment for children and adults with severe challenging behavior,
  2. ensuring that all children with autism in New Jersey have insurance coverage for medically necessary treatment, and
  3. including the recently enacted the Applied Behavior Analyst Licensing Act into all provider qualifications for behavioral services.

What is the 1115 waiver, and why is it important?

Renewed with the federal government every five (5) years, this waiver is a contract between the state and federal government that brings federal Medicaid funding to New Jersey for residential, day, and other services for adults and home-based services for children.

Adult services are funded via both the “Community Care Program” and the “Supports Program” under the Division of Developmental Disabilities.

Children’s services are funded through the “Children’s Support Services Program” under the Children’s System of Care’s Intensive In-Home program.

What is the timeline?

The first 1115 waiver spanned July 2012 – June 2017. The current renewal spans July 2017 – June 2022. The State is now planning for the third iteration, the July 2022 – June 2027 renewal, with the following milestones:

  • November 2020 – DHS solicits stakeholder input.
  • Before June 30, 2021 – DHS plans to release a detailed concept paper that highlights the major components of application. This concept paper will be made available for public comment, typically for 30-60 days, prior to submitting a formal application to the Centers for Medicare and Medicaid Services (CMS).
    • Update: DHS released their draft plan for public comment on September 10, 2021. Review proposed plan here.
  • On or before June 30, 2021 – DHS plans to submit a renewal application to CMS
  • June 30, 2022 – current waiver expires

What can I do?

  • Submit comments for DHS’s consideration. Tell the State which programs you would like to see continue, modified, or added. Comments can be sent to
  • Join our free email list to receive updates on the next steps of this and other important initiatives that impact the autism community.

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We remain focused on our mission to be a resource for the autism community. We recognize that there are many questions and complex considerations, and we are working hard to address these substantial issues and provide our expertise and stakeholder perspectives as plans evolve. We encourage you to regularly visit our central hub of coronavirus resources for the autism community.